PANS/PANDAS Support Resources for Parents and Caregivers

National (United States)

• PANDAS Network – Comprehensive information, research updates, and family support for PANS/PANDAS.
  Website: https://www.pandasnetwork.org

• PANDAS Physicians Network (PPN) – Medical guidelines, research, and provider directory.
  Website: https://www.pandasppn.org

• Northwest PANDAS/PANS Network (NWPPN) – A nonprofit serving families in Oregon, Washington, Idaho, and Alaska affected by PANDAS/PANS/AE, focused on raising awareness, providing education and resources, advocating for legislative change, and supporting local research. Website: https://www.nwppn.org nwppn

• ASPIRE (Alliance to Solve PANS & Immune-Related Encephalopathies) – Education, advocacy, and community resources for families.
  Website: https://www.aspire.care

• Neuroimmune Foundation – Research, education, and clinical resources for PANS/PANDAS and related disorders.
  Website: https://www.neuroimmune.org

• PANS Research Consortium (PRC) – Collaborative network of clinicians and researchers advancing understanding and treatment.
  Website: https://www.pansresearchconsortium.org

• National Institute of Mental Health (NIMH) – Research and information on neuropsychiatric and immune-related disorders.
  Website: https://www.nimh.nih.gov

• Wellness and Mental Health Resources for Canadians – https://www.litcolaw.com/guide-to-dealing-with-disabilities-in-canada/

Global Resources

• PANS/PANDAS UK – Support, advocacy, and awareness for families in the United Kingdom.
  Website: https://www.panspandasuk.org

• PANDAS/PANS Australia – Education, advocacy, and community support for Australian families.
  Website: https://www.pandas.org.au

• PANS/PANDAS Ireland – Awareness campaigns, family support, and medical education.
  Website: https://www.panspandasideire.ie

• PANS/PANDAS Canada – National advocacy and support network for families and healthcare providers.
  Website: https://www.panspandascanda.com

• European PANS/PANDAS Network (EPPN) – Collaborative European organization promoting awareness and research.
  Website: https://www.eppn.org

• PANDAS/PANS Global Alliance – International coalition supporting research, education, and advocacy.
  Website: https://www.pandasglobalalliance.org

Additional Online Communities and Tools

• PANDAS/PANS Awareness Facebook Groups – Peer-to-peer support and shared experiences for caregivers.
  Website: https://www.facebook.com/groups/pandasnetwork

• The PANDAS Resource Network – Directory of clinicians, treatment centers, and educational materials.
  Website: https://www.pandasresourcenetwork.org

These organizations and communities provide education, advocacy, and connection for families navigating PANS and PANDAS worldwide.