PANS/PANDAS Support Resources for Parents and Caregivers
National (United States)
PANDAS Network – Comprehensive information, research updates, and family support for PANS/PANDAS.
Website: https://www.pandasnetwork.orgPANDAS Physicians Network (PPN) – Medical guidelines, research, and provider directory.
Website: https://www.pandasppn.orgNorthwest PANDAS/PANS Network (NWPPN) – A nonprofit serving families in Oregon, Washington, Idaho, and Alaska affected by PANDAS/PANS/AE, focused on raising awareness, providing education and resources, advocating for legislative change, and supporting local research. Website: https://www.nwppn.org nwppn
ASPIRE (Alliance to Solve PANS & Immune-Related Encephalopathies) – Education, advocacy, and community resources for families.
Website: https://www.aspire.careNeuroimmune Foundation – Research, education, and clinical resources for PANS/PANDAS and related disorders.
Website: https://www.neuroimmune.orgPANS Research Consortium (PRC) – Collaborative network of clinicians and researchers advancing understanding and treatment.
Website: https://www.pansresearchconsortium.orgNational Institute of Mental Health (NIMH) – Research and information on neuropsychiatric and immune-related disorders.
Website: https://www.nimh.nih.gov
Global Resources
PANS/PANDAS UK – Support, advocacy, and awareness for families in the United Kingdom.
Website: https://www.panspandasuk.orgPANDAS/PANS Australia – Education, advocacy, and community support for Australian families.
Website: https://www.pandas.org.auPANS/PANDAS Ireland – Awareness campaigns, family support, and medical education.
Website: https://www.panspandasideire.iePANS/PANDAS Canada – National advocacy and support network for families and healthcare providers.
Website: https://www.panspandascanda.comEuropean PANS/PANDAS Network (EPPN) – Collaborative European organization promoting awareness and research.
Website: https://www.eppn.orgPANDAS/PANS Global Alliance – International coalition supporting research, education, and advocacy.
Website: https://www.pandasglobalalliance.org
Additional Online Communities and Tools
PANDAS/PANS Awareness Facebook Groups – Peer-to-peer support and shared experiences for caregivers.
Website: https://www.facebook.com/groups/pandasnetworkThe PANDAS Resource Network – Directory of clinicians, treatment centers, and educational materials.
Website: https://www.pandasresourcenetwork.org
These organizations and communities provide education, advocacy, and connection for families navigating PANS and PANDAS worldwide.